We had our 4 month follow up with the neurologiston the 6th. The seizures are still under great control! Zero since 2/14! She will continue the full dose of Zonegran and will also continue to wean off Phenobarbital (off by end of May!).
After going over all of her developmental milestones and achievements, they do want her in physical and speech therapy. They said she has hypotonia (known as low muscle tone). You can read more about low muscle tone here: http://en.wikipedia.org/wiki/Hypotonia The therapy will help her tremendously - we are very excited about this! We should find out this week when the therapy will start & all of the details, etc.
Overall it was a good meeting. They classified her type of seizures as myoclonic seizures, but she did not fit the characteristics to a specific epilepsy syndrome. This will just make it a little more challenging to see what lies ahead for Kaitlyn, but we are certainly optimistic!
Thank you again for all of your prayers!
