This journal was started to keep our family & friends updated on Kaitlyn.
We noticed Kaitlyn having episodes since she was about 6 months old (6/07). They would happen every few hours where she loses muscle control and blanks out. We initially thought that something may have startled her, as she would constrict her muscles very quickly and then go limp for a split second, much like you would do if you had been frightened by something. She makes a full recovery and continues to do whatever she was just prior to these incidents. After a while of noticing this activity more frequently, we decided to have her checked out and our pediatrician recommended an EEG.
Yesterday, we took Kaitlyn over to Children's Hospital for the EEG. Thinking we would have to wait 5 days for results, we were surprised when we received a call tonight from Kaitlyn's pediatrician. He confirmed that Kaitlyn is experiencing seizures. Hers are called focal seizures, confined to a limited area of the brain. The real concern in Kaitlyn's case is the frequency in which they occur. She is actually experiencing several of these seizures every minute, more intense when she sleeps, with a slower recovery time. That being said, she is a very happy baby and is not in any pain whatsoever.
Yesterday, we took Kaitlyn over to Children's Hospital for the EEG. Thinking we would have to wait 5 days for results, we were surprised when we received a call tonight from Kaitlyn's pediatrician. He confirmed that Kaitlyn is experiencing seizures. Hers are called focal seizures, confined to a limited area of the brain. The real concern in Kaitlyn's case is the frequency in which they occur. She is actually experiencing several of these seizures every minute, more intense when she sleeps, with a slower recovery time. That being said, she is a very happy baby and is not in any pain whatsoever.
The doctors want her to have vitamin B6 for 3 days, starting tonight. They want to make sure a B6 deficiency isn't causing the seizures.
We have a follow up appointment with her pediatrician on Monday to find out more information and then schedule a meeting with a Pediatric Neurologist, Dr. Olson. He is one of the leading neurologists in the southeast and we couldn't ask to be located in a better place to receive the best care and diagnosis possible.
We have many unanswered questions at this point and are trying to keep as calm and level headed as possible until we can get more details. Millions of people suffer from seizures and most are easily controlled with medication. We have never had any experience with them in our family though, and it is difficult to look at your 10 month old and know that she is experiencing them so often.
We will keep you posted as we find out more details.
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