Dr. Olson reviewed Kaitlyn's 2nd EEG and as we suspected, there were more clues with this test. From the tests, Dr. Olson determined that Kaitlyn's seizures are not focal or partial as once thought. She is experiencing generalized seizures. We are so thankful the EEG was able to provide more clues to help Dr. Olson treat Kaitlyn.
Tonight, he started her on an additional medication called Zonegran (Generic version is called zonisamide). It will take anywhere from 18 days to 6 weeks to get Kaitlyn up to a full dose of this new medication. Once Kaitlyn is taking a full dose, we should be able to see if this medication is helping control her seizures. She will take the zonisamide in addition to the phenobarbital.
After Kaitlyn is taking a full dose of the zonisamide, we will call Dr. Olson and give him our seizure diary and he'll make a determination of next steps depending on her progress.
Thank you so much for your prayers - the power of prayer is amazing.
If you'd like to read more about Epilepsy and seizures, please see www.epilespy.com This is a great source of information that Josh & I check regularly.
Have a wonderful week & we'll keep you posted on Kaitlyn's progress.
Wednesday, January 9, 2008
Tuesday, January 8, 2008
No results yet...
It's been several days since Kaitlyn's 2nd EEG. We're still waiting for the results and any other information. I left a message with Dr. Olson's nurse, so hopefully we'll hear something soon!
Wednesday, January 2, 2008
Seizures & EEG
After a few weeks of noticing an increase in Kaitlyn's seizures, we turned in her seizure diary to Dr. Olson. The seizures used to happen in a split second with one or two jerks (around 10-15 sets per day). Now, they happen at least 6 times per day, but with 4-8 jerks.
The seizure seems like it lasts an eternity for us, but in reality it's only a couple of seconds. The main difference is we have time to react to the seizure (or in my case, think about panicking).
We are having a second EEG done tomorrow AM at the request of her doctor. We were please to see that instead of another medication increase. Hopefully the EEG will give Dr. Olson more clues and maybe there's another medication that will help Kaitlyn.
Kaitlyn is still the happiest little girl around. She's been blossoming so much since her birthday. She says Mamamama and Babababab. It's so cute to hear her little voice. Especially when she looks at Josh as says, "Ma-ma-ma". She's also putting little cereal puffs in her mouth without help.
We will keep you posted as soon as we hear results.
Happy New Year!!
The seizure seems like it lasts an eternity for us, but in reality it's only a couple of seconds. The main difference is we have time to react to the seizure (or in my case, think about panicking).
We are having a second EEG done tomorrow AM at the request of her doctor. We were please to see that instead of another medication increase. Hopefully the EEG will give Dr. Olson more clues and maybe there's another medication that will help Kaitlyn.
Kaitlyn is still the happiest little girl around. She's been blossoming so much since her birthday. She says Mamamama and Babababab. It's so cute to hear her little voice. Especially when she looks at Josh as says, "Ma-ma-ma". She's also putting little cereal puffs in her mouth without help.
We will keep you posted as soon as we hear results.
Happy New Year!!
